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Chairman/President Allan Muir AGSD(UK) GSD Type II Representative Email:
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Secretary General Wilma Treur Vereniging Spierziekten Nederland (VSN) Email:
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Treasurer Helmut Erny SHG Glykogenose Deutschland e.V. (German GSD Association) Email:
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Board Member Tiffany House Acid Maltase Deficiency Association (AMDA) Email:
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Board Member Thomas Schaller SHG Glykogenose Deutschland e.V (German GSD Association) Email:
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Board Member Helen Walker † 30th Nov 2012 Australian Pompe’s Association (APA)
In Memoriam
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Board members are appointed for a maximum period of three years. They can be reappointed an indefinite number of times.
Advisory Board Members
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Randall House Acid Maltase Deficiency Association (AMDA) Email:
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Communications Coordinator Maryze Schoneveld van der Linde Vereniging Spierziekten Nederland (VSN) Email:
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Ria Broekgaarden Vereniging Spierziekten Nederland (VSN) Email:
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IPA Committees
Patient Organization Committee
Marylyn House, Acid Maltase Deficiency Association (AMDA)
Email:
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Scientific Committee
Ria Broekgaarden, Helen Walker
Legal Committee
Ria Broekgaarden, Helmut Erny
Website/Internet Committee
Tiffany House, Thomas Schaller
Financial Committee
Helmut Erny, Marylyn House