International Pompe Association

United Kingdom
Association for Glycogen Storage Disease (UK)
Address:
CobWebs, 43A North Lane
Buriton, Petersfield, Hampshire
GU31 5RS
United Kingdom
Email:
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Phone:
+44 (0)14 89 87 88 10
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Miscellaneous Information:

Contact: Allan Muir, Development Director

The AGSD-UK provides support and help for individuals and families affected by Glycogen Storage Disease. It does this by putting people in contact, providing information, issuing Newsletters and holding Conferences and Workshops. We have one full-time Family Support Nurse for Pompe patients based in Manchester, the association is staffed by the Development Director and a part-time Administrator based at our Droxford Office.