IPA - International Pompe Association

Patient Testimonials

Raymond

Published on: Sun, March 23, 2008

Photo of Raymond

I was diagnosed with Pompe’s disease (Acid Maltase Deficiency) in February 2001 after some time of increasing difficulties. I am 54 years old and I have a loving wife and 12 year old daughter who are my constant supporters. Pompe’s is unfortunately not a new visitor to our family as my brother was also a sufferer and passed away of Pompe’s some 10 years ago when he was only 52 years old.

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