IPA - International Pompe Association

Patient Testimonials

Helen

Published on: Sun, March 23, 2008

Photo of Helen

BACKGROUND Single - one living brother who lives interstate, approximately 2300 kilometres from me. He has heart problems. There are no second-generation children. I could start my story with the usual noted facts of what happened as a child because of limited physical ability or I could relate to the loneliness of not being able to participate in sport while living in a sport fanatical country of outside activities. Download pdf files to continue reading…

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