Patient Testimonials
Lucas
Published on: Sun, March 23, 2008
Lucas was born on 3rd February 2002. Apparently everything was normal with him and he seemed to have normal strength, but soon he started to experience the first problems.
When he was one month old he showed difficulties during his feeding sessions. He was unable to finish his meals and he failed to gain weight. His muscles were bulky and from the moment he was born he also had cyanosis around his mouth.
Download pdf files to continue reading…
© International Pompe Association
Secretariat (NL): +31 35 5480461