IPA - International Pompe Association

Patient Testimonials

Azaria

Published on: Sun, March 23, 2008

Having completed our Manchester phase of the drug trial, our next hurdle was to get back to our local hospital for treatment. Initially we thought that this would be straight forward,
however life’s not like that in this household! When our six months was nearly up and big plans for a party back in Plymouth all in place, the carpet was pulled out from beneath our feet again. Plymouth’s Derriford Hospital (only 15 minutes drive from home) did not have a Pediatric intensive care, and the drug company insisted that her treatment be carried out at the nearest hospital with this facility, in case she should need it any time. This meant that the process of setting up our transfer was back to square one. Our nearest unit was in Bristol, 2 hours from home, but at least we would be back living at home. Download pdf files to continue reading…

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