IPA - International Pompe Association

Patient Testimonials

John

Published on: Sun, March 23, 2008

Photo of John

I thought I would let you know how John (aged 60 +) is doing after seventeen infusions. As you know for the first 26 years of John’s illness we had no input from anyone. But for the last 3 years we have had two nurses on our side and thankfully they do their best to help in anyway they can. Social services and Rotherham District Hospital (RDH) are lacking in a lot of ways, but now John is under The Hope Hospital at Salford, Manchester things are so much different. At Hope he has 3 physicians looking after him. They are all so very good and show such a lot of interest in John which he has never had before.

English Translation