You will find links below to the various Pompe related web sites available. If you know of any Pompe related web site that you'd like to add to the list. Please email the IPA webmaster.
http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?LIST=GSDNET
GSDNet is an unmoderated discussion list for all types of glycogen storage disease (GSD). The list is intended to be a resource and support network for individuals and families affected by one of the 11 types of GSD. Participation by medical and scientific professionals, and other relevant parties, is also encouraged.
The website for the Global Organization for Lysosomal Diseases (GOLD)
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