International Pompe Association

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Here's a Survey of the International Ventilator Users Network (IVUN) the IPA strongly supports because it aims at improving the situation of ventilated people who need or want to fly. If you are a Pompe patient on ventilation please prticipate in this Survey. Thank you.

About the Survey:

Fulltime and Part-time Users of Home Mechanical Ventilation: Your experiences and opinions wanted! The survey is available in English, Dutch, French and Spanish.

The focus of this survey is flying as a ventilator user and we ask you to complete it even if you think you will never fly. There are questions for you. Please pass this message on to other vent users. Thank you!

What will we do with this information? IVUN is surveying the manufacturers of portable/home use ventilators and numerous airlines, too. IVUN will post a report and a summary of its findings on www.ventusers.org and on a poster presented at the joint meeting of the 13th International Conference on Home Mechanical Ventilation and the 4th European Respiratory Care Association Congress will be held March 15-17, 2012 in Barcelona, Spain.

Download Survey: