My name is Johan Bakker (1958). I live in the Netherlands. Until 1998 at the age of 30, I had just a normal life. Nobody noticed anything and I didn't know about my Pompe Disease. After that year I got more and more physical problems: climbing hills on the bike became difficult. I couldn't take a sprint anymore for the ball by tennis. Sometimes I had a fall. I walked uphill by bending the body forward. People thought it was strange, but no one wondered.
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