International Pompe Association

After 6 years of Enzyme Replacement Therapy, my daughter can climb up the staircase for 9 floors at Genting Highland's Pagoda weeks ago. Initially I have no plan to climb upstair but she insisted, and told me she would like to do it on her own, and I did learn from her that: Life is so precious, if you are persistent and fight for every single chance you have, nothing is impossible in this world!

Mother of Wei Ling, Malaysia