International Pompe Association

This is Haley, who has Pompe Disease, doing her "exercises". We have recently started these during Physical Therapy and we have been doing them the last few weeks during her all day infusions. My goal is to do several sets every 1-1.5 hours during infusions, but we are working up to it.

This is the 2nd video of more exercises that we are currently doing for Haley during her infusions and at physical therapy.