Pompe Connections Brochure
The Signs and Symptoms of Pompe Disease
This brochure is designed to help Pompe patients deal with the different issues that they might face. As of July 2010, the English version of the brochure has been updated to reflect that a treatment is now commercially available.
Getting The Right Care for Pompe Disease
This brochure lists down the resources in getting the right care for Pompe Disease. As of July 2010, the English version of the brochure has been updated to reflect that a treatment is now commercially available.
Adapting to Living with Pompe Disease
Information regarding ways, methods to adapt to a life with Pompe Disease.
Breathing Problems in Pompe Disease
Information regarding how to cope with breathing problems related to Pompe Disease.
Nutrition and Dietary Therapy
Nutrition and dietary information to aide in helping manage Pompe Disease.
Exercise and Physical Therapy
Information on the proper exercise and physical therapy that is relevant to Pompe Disease patients.
Common Health Concerns
Information about the common health concerns that are a result of living with Pompe Disease.
The Emotional Impact of Pompe Disease
Pompe Disease affects patients not only on the physical level but also emotionally. This file has information regarding common emotional issues that affect Pompe Disease patients.
Having Children When You Have Pompe Disease
Life doesn’t stop when you have Pompe Disease. Some patients would like to continue and to live as normally as they can. This includes having a family. This brochure has information regarding issues on having children if you have Pompe Disease.
Medical Progress In Pompe Disease
Information on the current state of treatment, therapies for Pompe Disease and where it’s headed. As of July 2010, the English version of the brochure has been updated to reflect that a treatment is now commercially available.
Resources for Learning More
Knowledge is important. This brochure lists down resources on learning more about Pompe Disease.
© International Pompe Association
Secretariat (NL): +31 35 5480461