IPA - International Pompe Association

What We Do

Mission Statement

The IPA will:

• Campaign for early diagnosis and effective, affordable and safe therapies
• Strive to provide information and support to all patients, their families and others with interests in Pompe disease

IPA Objectives

Our mission statement gives rise to the following general objectives:

• Stimulate research into the causes, treatment and prevention of Pompe disease
• Stimulate the rapid application of research into the causes, treatment and prevention of Pompe disease
• Promote early and accurate diagnosis and screening programs for Pompe disease
• Support and encourage national organisations to obtain approval and reimbursement for therapies from government bodies and health providers
• Encourage other organisations or individuals to establish a mechanism for all patients to gain access to therapies irrespective of their personal financial status
• Encourage the formation and support the continued development of national Pompe organisations
• Establish and maintain a key position with industry, researchers and individuals with interests in Pompe disease
• Provide educational and informative publications through electronic and other media