IPA - International Pompe Association

IPA Board

Board members are appointed for a maximum period of three years. They can be reappointed an indefinite number of times.


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Chariman/President:
Allan Muir
AGSD(UK) GSD Type II Representative
Email:



Secretary General:
Wilma Treur
Vereniging Spierziekten Nederland (VSN)
Email:


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Treasurer:
Helmut Erny
SHG Glykogenose e.V (German Association)
Email:


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Board Member:
Tiffany House
Acid Maltase Deficiency Association (AMDA)
Email:


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Board Member:
Thomas Schaller
SHG Glykogenose e.V (German Association)
Email:


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Helen Walker
Australian Pompe’s Association (APA)
Email:



IPA Committees


Patient Organization Committee

Marylyn House
Acid Maltase Deficiency Association (AMDA)
Email:

Scientific Committee

Ria Broekgaarden and Helen Walker

Legal Committee

Ria Broekgaarden and Helmut Erny

Website/Internet Committee

Tiffany House

Financial Committee

Helmut Erny and Marylyn House

Advisory Board Members

Randall House
Acid Maltase Deficiency Association (AMDA)
Email:


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Maryze Schoneveld van der Linde
Vereniging Spierziekten Nederland (VSN)
Email:


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Ria Broekgaarden
Vereniging Spierziekten Nederland (VSN)
Email: