Below you will find links to the various Pompe related web sites available. If you know of any Pompe related web site that you'd like to add to the list please email us.

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Glycogen Storage Disease Network (GSDnet)

GSDNet is an unmoderated discussion list for all types of glycogen storage disease (GSD). The list is intended to be a resource and support network for individuals and families affected by one of the 11 types of GSD. Participation by medical and scientific professionals, and other relevant parties, is also encouraged.


Your feedback is highly appreciated.
It's easy: Submit a request or send an e-mail to the IPA
(see bottom of page).