Patient Websites
Please refer also to the list of Individuals affiliated with the IPA.
Display # 
# Web Link
Personal Pompe Pages.
Some basic information on Pompe disease in English and German.
Personal Pompe Pages.
A huge collection of Pompe related information in German.

3 VERBEEK Family
A family homepage in Dutch.
4 Gezinus WOLTERS
This is the personal homepage of Pompe patient, Gezinus Wolters. There is information on the site in both English and Dutch.
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Glycogen Storage Disease Network (GSDnet)

GSDNet is an unmoderated discussion list for all types of glycogen storage disease (GSD). The list is intended to be a resource and support network for individuals and families affected by one of the 11 types of GSD. Participation by medical and scientific professionals, and other relevant parties, is also encouraged.


Your feedback is highly appreciated.
It's easy: Submit a request or send an e-mail to the IPA
(see bottom of page).