main_image03.jpg

Pompe Links

Pompe Organizations

Please refer also to the list of IPA Affiliates for national Pompe organizations.
Display # 
# Web Link
1 International Pompe Association (IPA)
We're the makers of this website. Please click the link to contact us.
2 EURORDIS - The Voice of Rare Disease Patients in Europe
The European Organisation for Rare Diseases, EURORDIS, is a patient-driven alliance of patient organisations and individuals active in the field of rare diseases. Eurordis' mission is to build a strong pan-European community of patient organisations and people living with rare diseases, to be their voice at the European level, and - directly or indirectly - to fight against the impact of rare diseases on their lives.
3 The Pompe Center at Erasmus MC
Information for patients, scientists, clinicians, genetic counsellors and others with special interest in Pompe disease.

Erasmus MC is home of one of the leading Pompe teams in the world.
4 United Pompe Foundation
The United Pompe Foundation was formed to assist patients and/or their families with medical costs and other expenses that these patients and families face and may not be able to cover, or fully cover, through their insurance.
E-mail: david@unitedpompe.com
You are here: Home More... Links Pompe Organizations

Featured Link

Glycogen Storage Disease Network (GSDnet)

GSDNet is an unmoderated discussion list for all types of glycogen storage disease (GSD). The list is intended to be a resource and support network for individuals and families affected by one of the 11 types of GSD. Participation by medical and scientific professionals, and other relevant parties, is also encouraged.

Share
Feedback

Your feedback is highly appreciated.
It's easy: Submit a request or send an e-mail to the IPA
(see bottom of page).

 

 

feed-image

International Pompe Association
Contact: IPA secretariat, Paula Waddell, c/o VSN, Luitenant Generaal van Heutszlaan 6, 3743 JN Baarn, The Netherlands
Phone +31(35)5480480, Fax +31(35)5480499, E-mail info@worldpompe.org
Chamber of Commerce (Kamer van Koophandel) number: 32090949
Read our privacy policy and how to opt-out of web analytics.