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1 Second Pompe Awareness Day in India June 05, 2013 LSD Support Society India
2 Federal Advisory Committee Recommends Pompe Disease for Universal Newborn Screening May 18, 2013 geneticalliance.org
3 Discoverer of lysosomes, Dr. Christian de Duve, dies at 95 May 12, 2013 Maryze
4 Rare Disease Patient Meeting in Croatia April 23, 2013 Maryze
5 Study demonstrates the positive effect of enzyme replacement therapy on survival in adults with Pompe disease March 27, 2013 IPA
6 Voting for International Pompe Day "date" is now open! March 26, 2013 IPA
7 BioMarin Reports Promising Results of Pompe Phase 1/2 Trial March 20, 2013 BioMarin
8 Pompe Rare Disease Care Center in China Established March 19, 2013 Maryze
9 Genzyme receives Company Award from EURORDIS February 27, 2013 Genzyme
10 International Pompe Day planned for 2014 February 25, 2013 IPA
 
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