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Testimonials on Video

Examples available on the web showing what Pompe Disease means for Patients in their daily lives and how to overcome challenges.
# Patient Name / Video Title Date Source
1 Born Fighter 1 of 2 2012-01 YouTube
2 Born Fighter 2 of 2 2012-01 YouTube
3 Chloe (Video) 2010-10 YouTube
4 Five Families (Video - part 1) 2009-02 YouTube / Genzyme
5 Five Families (Video - part 2) 2009-02 YouTube / Genzyme
6 Five Families (Video - part 3) 2009-02 YouTube / Genzyme
7 Five Families (Video - part 4) 2009-02 YouTube / Genzyme
8 Five Families (Video - part 5) 2009-02 YouTube / Genzyme
9 Haley (Video) 2011-10 YouTube
10 Haley Hayes: My special sister 2012-02 YouTube
11 Haley's Weight Exercises (part 1) 2012-06 YouTube
12 Haley's Weight Exercises (part 2) 2012-06 YouTube
13 Haley's Weight Exercises (part 3) 2012-06 YouTube
14 Hope in the Genes (Different Families) 2012-11 YouTube
15 Juan du Plessis 2012-06 YouTube
16 Lucas (Video) 2008-02 YouTube
17 Nidhi Shirol 2011-06 YouTube
18 Phoenix (Video - part 1) 2008-10 YouTube
19 Phoenix (Video - part 2) 2008-10 YouTube
20 Phoenix (Video - part 3) 2008-10 YouTube
21 Wei Ling 2012-01 YouTube
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International Pompe Association
Contact: IPA secretariat, Paula Waddell, c/o VSN, Luitenant Generaal van Heutszlaan 6, 3743 JN Baarn, The Netherlands
Phone +31(35)5480480, Fax +31(35)5480499, E-mail info@worldpompe.org
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