International Pompe Association

  • Stimulate research into the causes, treatment and prevention of Pompe disease
  • Stimulate the rapid application of research into the causes, treatment and prevention of Pompe disease
  • Promote early and accurate diagnosis and screening programs for Pompe disease
  • Support and encourage national organisations to obtain approval and reimbursement for therapies from government bodies and health providers
  • Encourage other organisations or individuals to establish a mechanism for all patients to gain access to therapies irrespective of their personal financial status
  • Encourage the formation and support the continued development of national Pompe organisations
  • Establish and maintain a key position with industry, researchers and individuals with interests in Pompe disease
  • Provide educational and informative publications through electronic and other media