International Pompe Association


Contacts are individual persons who act as links to national activities but do not officially represent a national patient organisation. They have no admission to the annual general meetings and pay no membership fee.

  • Algeria Association Shifa des Maladies NeuroMusculaires (ASMNM)
  • Argentina Asociación de Pacientes de Enfermedades Lisosomales de la Republica Argentina (APELRA)
  • Austria Österreichische Morbus Pompe Selbsthilfeorganisation
  • Belgium Belgische Organisatie voor kinderen en volwassenen met een stofwisselingsziekte (BOKS)
  • Belgium (2) Vlaamse Vereniging Neuromusculaire Aandoeningen (NEMA)
  • Bulgaria National Alliance of People with Rare Diseases
  • Chile Fundación Chilena de Pacientes de Enfermedades Lisosomales (FELCH)
  • China The China Patients Federation of Pompe Disease
  • China (2) Muscular Dystrophy Association China
  • Colombia Colombia Asociación Colombiana de Pacientes con Enfermedades de Depósito Liposomal (ACOPEL)
  • Croatia Croatian Alliance for Rare Diseases (Hrvatski savez za rijetke bolesti)
  • Czech Republic (2) Asociace muskulárních dystofikù v ÈR
  • Denmark Pompe Group Denmark
  • Ecuador Fundación Ecuatoriana de Pacientes con Enfermedades de Depósito Lisosomal (FEPEL DASHA)
  • France Association Francophone Glycogenose (AFG)
  • Hong Kong Hong Kong Mucopolysaccharidoses & Rare Genetic Diseases Mutual Aid Group
  • India LSD Support Society (LSDSS)
  • Israel Enzyme Association for Israeli Pompe Patients
  • Italy Associazione Italiana Glicogenosi (AIG)