International Pompe Association

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Welcome to the International Pompe Association (IPA)


Pompe News

Contacts

Contacts are individual persons who act as links to national activities but do not officially represent a national patient organisation. They have no admission to the annual general meetings and pay no membership fee.

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Quick Links

  • About IPA
    The International Pompe Association (IPA) is a federation of Pompe disease patient's groups.
  • IPA Members and Contacts
    Find a contact person or organisation in your country.
  • PompeConnections and Treatment Edition
    Our brochures are available in many languages and designed to help Pompe patients.
  • Clinical Trials
    Useful links to informations about past and on-going clinical trials.
  • Pompe Survey
    Questionnaire project “Investigation into the clinical condition of late onset Pompe patients”.