Since January 1st 2012 the South Korean government has approved reimbursement of enzyme replacement therapy as treatment in Pompe Disease. The treatment is now available for all Pompe patients.
The Korean Organization for Rare Diseases (KORD) has been very active and played a critical role to make treatment for Pompe patients available. Besides this KORD also has supported Pompe patients actively to get respiratory equipment reimbursed.
Currently 20 Pompe patients in South Korea are known and being treated with enzyme replacement therapy.