International Pompe Association

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Guidelines from Erasmus Medical Center, the Netherlands

As a guideline we recommend that all patients with Pompe disease are vaccinated against influenza. This applies both to the seasonal influenza as well as for the 2009 flu pandemic (influenza virus A/H1N1 – also called Swine flu, Hog flu, Pig flu or Mexican flu).  It is especially important for patients with reduced lung function to be vaccinated because the H1N1 virus can cause increased breathing difficulties.  In order to maximise your body’s defences we advise Pompe patients to have their vaccinations, if possible, at least to 2 days before or at least 2 days after a Myozyme infusion.