International Pompe Association

The IPA would like to provide a place where you can post a picture or a memory, of someone special you have loved and lost.

Our memorial page is not about death, it's about life. It's about appreciating the beautiful gift of being alive and taking the time to remember those who are no longer with us, and those that are.

If you would like to post a picture and/or a memory of a loved one you have lost, please do the following:

  • Draft a Memorial and send it to the IPA Webmaster ( Do not forget to include the full name, country and (at least) the year of death of the person the memorial is dedicated to.
  • If you attach a picture to the mail please make sure that you have the permission to submit it for publication on the IPA website. Fill in the Photo Release Form (PDF, 117 kB) and submit it to the IPA.

For all questions, please contact the Webmaster.