International Pompe Association

altMy name is Frank and I was born in April 1968. I am married, and father of two children (Roy: 1995 and Kim: 1996). At December 2004 the diagnosis Pompe Disease was made.

At June 2003 I went for the first time to my General Practitioner (GP) due to lower back pain. I also went as many others asked me  if I had back pain, because of my strange way of walking.

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