Welcome to the International Pompe Association (IPA)
Mr. Uğur Tatlıcı, CEO of UNT Holding and son of the late Mr. Mehmet Salih Tatlıcı (1931 - 2009), donated 800 Euro's to the IPA in September 2014. The donation was in memory of Mr. Mehmet Salih Tatlıcı and made through a Charity Fund he founded.
Mr. Tatlıcı had a deep respect for humanity and the Earth. His Charity was set up to provide financial support to organisations that support people with a disease or disability or preserve nature and the environment. The Charity is continued by his son Mr. Uğur Tatlıcı and his wife Nurten Tatlıcı. By doing so the memory of Mr. Mehmet Salih Tatlıcı is kept alive.
The IPA is grateful for this unexpected financial support. It will help to continue IPA's international activities to support Pompe patients and their families around the world.
For more information on the donation, please go to Tatlici Gercekleri
Genzyme's program Expression of Hope III is open for submissions
Over the years Genzyme has organised the Expression of Hope program, an unique program to encourage everyone affected by a lysosomal storage disorder to create and submit a work of art that expresses their experiences of living with an LSD. This program helps to raise awareness as artwork is exhibited all around the world.
For more information about this wonderful project, please go to the Expression of Hope website.
The IPA Board wants to take this opportunity to share some news with you.
Effective September 1, 2014 Allan Muir has stepped down as Chair of the IPA and Tiffany House was selected by the Board to serve as the new Chair.
The IPA and the Pompe Community are extremely grateful and fortunate to have had Allan's leadership and guidance as IPA Chair since 2006, and we are happy to announce that he will continue to serve on the Board of the IPA.
Tiffany House is looking forward to continuing to serve and to work with you in her new position.
The IPA Board