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Patient-Focused Publications


PompeConnections and PompeConnections Treatment Edition: your source for Pompe related information. Available in Multiple Languages. Topics include:

  • Adapting to living with Pompe disease
  • Breathing problems
  • Nutrition and dietary therapy
  • Exercise and physical therapy
  • Having children when you have Pompe disease

The PompeConnections contain medical reviewed and approved information from experts around the world. Many brochures have been revised and updated recently.