Pompe Patient Conference Netherlands

6th September 2014, Pompe Disease Program, Veldhoven, the Netherlands                  ...
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September 6, 2014

New Chairwoman for International Pompe Association

The IPA Board wants to take this opportunity to share some news with you. Effective September 1, 2014...
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September 5, 2014

Infantile Pompe Patient Meeting

August 8 – 9, 2014, Lenox Baker Hospital, Durham, North Carolina, USA The 2nd Annual Infantile Pompe Patient...
Author: Maryze
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August 8, 2014

Resounding Success International Pompe Day 2014

The IPA is excited to announce that the first annual International Pompe Day on April 15 2014 was...
Author: Tiffany House
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August 5, 2014

Genzyme Receives Label Expansion for Lumizyme® (alglucosidase alfa) in the United States for the treatment of Pompe Disease

“Genzyme, a Sanofi company (EURONEXT: SAN and NYSE: SNY), today announced that the U.S. Food and Drug Administration...
Author: Genzyme
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August 1, 2014

Carine van Capelle receives PhD with her thesis of Children with Pompe disease: clinical characteristics, peculiar features and effects of enzyme replacement therapy

Wednesday June 18, 2014 Dr. Carine van Capelle received her PhD on ‘Children with Pompe disease: clinical characteristics, peculiar features and...
Author: Maryze
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June 25, 2014

Linda van den Berg receives PhD with her thesis on ‘The Musculoskeletal System in Pompe Disease – Pathology, consequences and treatment options’

Tuesday June 24, 2014 Dr. Linda van den Berg received her PhD on ‘The Musculoskeletal System in Pompe disease – Pathology...
Author: Maryze
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June 24, 2014

Patient Meeting of the Canadian Association of Pompe

June 20 – 23, 2014 in Fredericton, New Brunswick, Canada The Canadian Association of Pompe organises patient meeting. The meeting is extended...
Author: Maryze
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June 20, 2014

Japanese Patient Meeting in Tokyo

Japanese Patient Meeting – June 15, 2014 in Tokyo, Japan The Japanese Pompe Association organises patient meeting for patients and their families. At the...
Author: Maryze
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June 15, 2014

Clinical Trials

Clinical Trials are listed on www.clinicaltrials.gov. Find Pompe studies by entering the search term “Pompe”. You can further...
Author: Webmaster
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June 11, 2014
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