November 28-30, 2013 in Heidelberg, Germany (new date!) For the first time, an international conference will bring together...

Dear IPA members, The IPA board would like to welcome you to attend the IPA Annual General Meeting...

March 30 – April 1, 2012 in Duderstadt, Germany Annual Meeting of Selbsthilfegruppe Glykogenose Deutschland e.V.(German Patient Association)...

A Press Release issued by Emine Bozkurt (Member of Dutch Social Democrat Party) The European Parliament supported today...

Neonatal screening for Pompe disease has been introduced in Taiwan and a few U.S. states, while other jurisdictions...

March 7, 2012 | 1:00pm (EST) Needle Core Muscle Biopsy The AMDA has scheduled the next webinar. Here...

February 29th is a day that only happens every 4 years. A rare day that was on our...

Here’s a Survey of the International Ventilator Users Network (IVUN) the IPA strongly supports because it aims at...

Since January 1st 2012 the South Korean government has approved reimbursement of enzyme replacement therapy as treatment in...

February 8, 9, 10 2012 in San Diego, California, USA 8th Annual WORLD Symposium of the Lysosomal Disease Network The Lysosomal...