1500 miles in the saddle, 3 weeks battling against the roads, mountains and valleys, traffic and the elements:...

In the Summer of 2008 families affected by Pompe Disease started a patient organisation to support people with...

Two more patient testimonials were updated on the IPA website in August (Frank, Theo) and a new one...

See the updated conference information , including the conference agenda and a travel grant for patients.

The following information is taken from the Pompe Community Update Newsletter with permission by Amicus: Summer 2011 Amicus...

The following information is taken from the Pompe Community Update Newsletter with permission by Amicus: Summer 2011 Earlier...

A patient testimonial was updated on the IPA website: John’s story. Read more… You’re a patient and can...

September 16 – 17 2011 in Indianapolis, USA                             AGSD USA 2011 annual conference The Association for Glycogen Storage Disorders USA has its annual meeting...

Little helpers in everyday life can make a big difference. Have a look at the new section on...

October 28 – 29 2011 in Austria/Österreich     Heidi Gmeiner Zoll 86 A-6861 Alberschwende   Telefon:    +43 (0) 5579 83184 Mobil:        +43 (0) 650...