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IPA Reviews & Reports
Chairman’s Report 2013for the year 2012Published July 2013 Download 2013 Chairman’s Report (PDF, 49 kB) Chairman’s Report 2010for...
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January 14, 2011
Greece Update / Paper on Adult Pompe Patients
(Access for IPA staff only) There are (at least) 5 adult Pompe patients treated in Greece of which...
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IPA internal
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January 13, 2011
Results of Chaperone/ERT Study Expected for Second Half of 2011
In a press release, Amicus Therapeutics announce expected key milestones in 2011, among them results from a phase...
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Amicus
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January 10, 2011
Patient Testimonials
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January 6, 2011
Clinical Trials (unpublished / table outdatet)
Here are some experiences of patients and parents about participating in an enzyme replacement therapy trial. Anouk’s Story Bartjan’s...
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January 6, 2011
Pompe Publications
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January 6, 2011
Clinical Trials
Here are some experiences of patients and parents about participating in an enzyme replacement therapy trial. Anouk’s Story Bartjan’s...
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January 6, 2011
Request to pay for life-saving drug rejected
Pompe in the Press (Newcastle Herald, Australia): “We are fighting for our lives here, Mrs Cook said. We...
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Press
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December 27, 2010
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December 27, 2010
Life saving drug rejected for Wagga woman
Pompe in the Press (The Daily Advertiser, Australia): “The federal government has rejected a bid to subsidise a...
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December 22, 2010
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