The Internet plays a key role in allowing patient organisations to empower patients and families to understand Pompe...

Dr. J.M.A. van den Boer-van den Berg, an Ethicist at Erasmus University Medical Centre Rotterdam, discusses medical responsibility...

Mrs M. House, from the Acid Maltase Deficiency Association in the USA, discusses forming the AMDA, progress and...

Mr. Y.S. Poortman, from the Dutch Association Neuromuscular Diseases, discusses the possibilities for patient organizations.

The mission statement for the International Pompe Association was defined in a March 1998 meeting.