nl6th September 2014, Pompe Disease Program, Veldhoven, the Netherlands                                                                

The day starts at 12.00 with a Lunch. From 12.00 - 14.00 hours you can visit several booths with information on equipment and information on issues related to neuromuscular diseases.

The Program:

14.00: Welcome and Opening by Wilma Treur

14.10 - 14.35: Latest developments and results of innovative treatment methods by Prof. Dr. van der Ploeg

14.35 - 15.00: Update on research on stemcelltherapie in Pompe Disease by Dr. Pijnappel

15.00 - 15.30: Results of the Pompe Survey by Drs. van der Meijden

15.30 - 16.15: Myocafé, meeting each other and sharing experiences.

16.15: Closure

(Last Updated Sunday, 20 July 2014 19:11)

altSeptember 20, 2014 in Bloomington, Minnesota, USA

World Fair - Lysosomal Storage Disease Mini World Symposium

Discuss care and research on lysosomal conditions with international experts.

Date: September 20, 2014

Time: 8 am - 3.30 pm

Hilton Hotel - Mall of America
3800 America Blvd East
Bloomington, MN 55425, USA

RSVP with your name and number of people attending

Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Phone: +1 763 424 7983

The meeting will include free buffet breakfast and lunch.

(Last Updated Monday, 28 July 2014 13:57)


auOctober 18 - 19, 2014 in Melbourne, Australia 

'The Australian Pompe's Association Inaugural Patient and Friend's Forum'

Program details will follow

maltaser clear

(Last Updated Saturday, 01 March 2014 17:19)


You are welcome to submit your events to be listed here. Just send an e-mail to


Other event pages on the web:

You are here: Home Events

Your feedback is highly appreciated.
It's easy: Submit a request or send an e-mail to the IPA
(see bottom of page).