December 7, 2013 in Copenhagen, Denmark
Workshop on Pompe Disease for Pompe Patients in Copenhagen, Denmark
During this workshop on Pompe Disease, Pompe patients and their families will learn about the several issues in Pompe Disease. Presentations will be given by several experts on topics such as symptoms of Pompe Disease, diagnosis, treatment, the international Pompe patient network, rare diseases and Muskelsvindfonden.
After lunch a workshop on Living with Pompe Disease will held.
Location: Hotel Cabin-Metro, Arne Jacobsens Allé 2, 2300 Copenhagen, Denmark
Date: December 7, 2013
Time: 9.30 – 16.00 hrs
For more information, please contact Anne Kahr Hällman at anne_kahr@hotmail.com