Events

The Rare Disease Day is held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. Read more on Wikipedia

The IPA is one again excited to join the international Pompe community to celebrate International Pompe Day on April 15th! The goal of International Pompe Day is to foster international awareness of Pompe Disease and the slogan for our day is “Together We Are Strong”.