Welcome to the International Pompe Association (IPA)
The Acid Maltase Deficiency Association (AMDA) in the USA, one of the members of the IPA, took the intiative to create an International Pompe Day Commemorative Book. This 70+ page Commemorative Book highlights the international activities that occured on the First Annual International Pompe Day at April 15, and will serve as a permanent reminder of how 'Together We Are Strong'!
Press Release - For Immediate Release
October 1, 2014
The International Pompe Association (IPA) is excited to announce that it has been selected as a recipient of Genzyme's 4th Annual PAL Awards program for its "Pompe M-Power" Pilot Project.
The Genzyme PAL Awards grants program was launched in 2011 to encourage bold new ideas and programs to support the LSD community worldwide. The PAL program funds innovative projects in disease awareness and education, community mobilization, non-profit development and good governance activities, patient care and support programs.
"The IPA's Pompe M-Power Pilot Project is the first step in launching the international 'Pompe M-Power' program, which will identify, educate, and mentor the future Pompe leaders in our Community. We appreciate Genzyme and the PAL Award Review Committee's recognition of this important project and look forward to beginning this work with our Pilot Program in the second to third quarter of 2015," says Tiffany House (IPA Chair).
Mr. Uğur Tatlıcı, CEO of UNT Holding and son of the late Mr. Mehmet Salih Tatlıcı (1931 - 2009), donated 800 Euro's to the IPA in September 2014. The donation was in memory of Mr. Mehmet Salih Tatlıcı and made through a Charity Fund he founded.
Mr. Tatlıcı had a deep respect for humanity and the Earth. His Charity was set up to provide financial support to organisations that support people with a disease or disability or preserve nature and the environment. The Charity is continued by his son Mr. Uğur Tatlıcı and his wife Nurten Tatlıcı. By doing so the memory of Mr. Mehmet Salih Tatlıcı is kept alive.
The IPA is grateful for this unexpected financial support. It will help to continue IPA's international activities to support Pompe patients and their families around the world.
For more information on the donation, please go to Tatlici Gercekleri