International Pompe Association

 

IPA Board

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Chairman/President
Tiffany House
Acid Maltase Deficiency Association (AMDA)

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Treasurer
Wilma Treur
Vereniging Spierziekten Nederland (VSN)

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Secretary General
Paula Waddell

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Board Member
Fabio Di Pietro

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Board Member
Allan Muir
Pompe Support Network

no portrait available

Board Member
Raymond Saich
Australian Pompe Association (APA)

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Board Member
Thomas Schaller
Pompe Deutschland e.V. (Pompe Germany)

Helen Walker

Board Member
Helen Walker † 30th Nov 2012
Australian Pompe’s Association (APA)

In Memoriam

Board members are appointed for a maximum period of three years. They can be reappointed an indefinite number of times.

 

Advisors to the Board

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Ria Broekgaarden
Vereniging Spierziekten Nederland (VSN)

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Treasurer
Helmut Erny
SHG Glykogenose Deutschland e.V. (German GSD Association)

Randall House

Randall House
Acid Maltase Deficiency Association (AMDA)

Kevin O'Donnell

Kevin O'Donnell

Arnold Reuser

Dr. Arnold Reuser

 

Communications Coordinator

Maryze Schoneveld van der Linde

Communications Coordinator
Maryze Schoneveld van der Linde
Vereniging Spierziekten Nederland (VSN)