IPA Board
Board members are appointed for a maximum term of three years. They can be reappointed an indefinite number of times.
Board members are appointed for a maximum term of three years. They can be reappointed an indefinite number of times.
Vice-Chairman
Brad Crittenden
Canadian Association of Pompe (CAP)
Secretariat
Fabio Di Pietro
Treasurer
Wilma Treur
Vereniging Spierziekten Nederland (VSN)
Board Member
Hülya Apaydin
Pompe Support Network
Board Member
Annic Kolbrück
Pompe Deutschland e.V. (Pompe Germany)
Board Member
Raymond Saich
Australian Pompe Association (APA)
Ria Broekgaarden
Vereniging Spierziekten Nederland (VSN)
Helmut Erny
SHG Glykogenose Deutschland e.V. (German GSD Association)
Randall House
Acid Maltase Deficiency Association (AMDA)
Allan Muir
Pompe Support Network
Kevin O’Donnell
Dr. Arnold Reuser
Thomas Schaller
Pompe Deutschland e.V. (Pompe Germany)
Chairman/President
Tiffany House † 25th May 2025
Acid Maltase Deficiency Association (AMDA)
In Memoriam
Communications Coordinator
Maryze Schoneveld van der Linde † 14th May 2025
PACES Patient Centered Solutions
In Memoriam
Board Member
Helen Walker † 30th Nov 2012
Australian Pompe’s Association (APA)
In Memoriam