International Pompe Association

 

IPA Board

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Chairman/President
Tiffany House
Acid Maltase Deficiency Association (AMDA)

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Secretary General
Wilma Treur
Vereniging Spierziekten Nederland (VSN)

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Treasurer
Helmut Erny
SHG Glykogenose Deutschland e.V. (German GSD Association)

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Board Member
Allan Muir
AGSD(UK) GSD Type II Representative

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Board Member
Thomas Schaller
Pompe Deutschland e.V. (Pompe Germany)

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Board Member
Paula Waddell

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Board Member
Fabio Di Pietro

Helen Walker

Board Member
Helen Walker † 30th Nov 2012
Australian Pompe’s Association (APA)

In Memoriam

Board members are appointed for a maximum period of three years. They can be reappointed an indefinite number of times.

 

IPA Advisors

Randall House

Randall House
Acid Maltase Deficiency Association (AMDA)

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Ria Broekgaarden
Vereniging Spierziekten Nederland (VSN)

Kevin O'Donnell

Kevin O'Donnell

Arnold Reuser

Dr. Arnold Reuser

 

IPA Communications Coordinator

Maryze Schoneveld van der Linde

Communications Coordinator
Maryze Schoneveld van der Linde
Vereniging Spierziekten Nederland (VSN)

 

IPA Committees

Patient Organization Committee
Marylyn House, Acid Maltase Deficiency Association (AMDA)

Scientific Committee
Ria Broekgaarden, N.N.

Legal Committee
Ria Broekgaarden, Helmut Erny

Website/Internet Committee
Tiffany House, Thomas Schaller

Financial Committee
Helmut Erny, Marylyn House