IPA Conferences

The IPA is proud to have hosted patient and scientific conferences since its inception in 1999. Below you will find reports and information from these events.

IPA Conference-1999

The challenges of rhGAA manufacture

Dr. B. Devlin from Synpac (NC), Inc., USA discusses Synpac's commitment to bring a recombinant enzyme therapy for Pompe disease...
Author: IPA
IPA Conferences
November 30, 1999
IPA Conference-1999

From patient initiative to treatment

Ms. M. Schoneveld van der Linde discusses the patient initiative to treatment for Pompe disease.
Author: IPA
IPA Conferences
November 30, 1999
IPA Conference-1999

Knowledge is power

The Internet plays a key role in allowing patient organisations to empower patients and families to understand Pompe disease, advances...
Author: IPA
IPA Conferences
November 30, 1999
IPA Conference-1999

How to do good and to prevent harm?

Dr. J.M.A. van den Boer-van den Berg, an Ethicist at Erasmus University Medical Centre Rotterdam, discusses medical responsibility and ethics.
Author: IPA
IPA Conferences
November 30, 1999
IPA Conference-1999

Forming a national Pompe group: our experience

Mrs M. House, from the Acid Maltase Deficiency Association in the USA, discusses forming the AMDA, progress and future goals.
Author: IPA
IPA Conferences
November 30, 1999
IPA Conference-1999

The International Pompe Association; position, objectives, policy and activities

Mr. Y.S. Poortman, from the Dutch Association Neuromuscular Diseases, discusses the possibilities for patient organizations.
Author: IPA
IPA Conferences
November 30, 1999
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