AMDA / IPA 2011 Patient and Scientific Conference USA

Tiffany House
Category: Archive
October 6, 2011

usOctober 7-9, 2011 in San Antonio, Texas, USA, at the Holiday Inn Riverwalk

AMDA / IPA 2011 Patient and Scientific Conference

The Acid Maltase Deficiency Association (AMDA) and the International Pompe Association (IPA) are excited to announce that the following topics will be addressed at the Conference:

  • Presentations on Enzyme Replacement Therapy by Drs. Ans van der Ploeg and Priya Kishnani
  • Gene Therapy Presentations by Drs. Andrea Amalfitano, Gerard Wagemaker, Dwight Koeberl, and Barry Byrne
  • Muscle Regeneration by Dr. Ans van der Ploeg
  • Approaches to Managing Antibodies by Dr. Priya Kishnani
  • Swallowing, Dysphagia, and Lingual Weakness in Pompe Disease by Dr. Harrison Jones
  • Autophagy and Pompe Disease by Dr. Nina Raben
  • Respiratory Support for Pompe Patients by Dr. John Bach
  • Report on Erasmus Exercise Trial by Dr. Linda van der Berg
  • Patient Perspective on Erasmus Exercise Trial by Wilma Treur
  • Report from a Newborn Screening Survey by Ria Broekgaarden
  • Report from the IPA/Erasmus Pompe Patient Survey by Dr. Deniz Gungor
  • Psycho-social and Emotional Aspects of Pompe Disease by Maryze Schoneveld van der Linde
  • Industry Updates from BioMarin, Genzyme, and Amicus

Download the Conference Agenda (PDF file).

We are very excited about our Program and hope to see you all in San Antonio. You can register for the conference online.

A travel grant for patients is available on a first-come-first-serve basis: the AMDA will pay for one room at the Holiday Inn ($112/night) PER REGISTERED PATIENT. More details in the online registration form and in the FAQ.

Please check the list of Frequently Asked Questions (PDF file) related to the Conference (provided by AMDA).

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