UPF Pompe Social & Patient Meeting

Category: Archive
April 20, 2012

April 20-21, 2012 at Duke University Medical Center, Durham, NC, USAus

United Pompe Foundation (UPF) Pompe Social & Patient Meeting

The United Pompe Foundation (UPF) has organised a Pompe Social & Patient Meeting at Duke University Medical Center in Durham, North Carolina.

Dr. Priya Kishnani & the Duke Pompe Team will hold clinic on Thursday, April 19th & Friday, April 20th at Lenox Baker Hospital, Durham, North Carolina. Please read the invitation for further information.

On Friday, April 20, 2012 there will be a Patient Social and ‘Open Mic’ from 6.00 p.m. – 9.00 p.m.

On Saturday, April 21, 2012 the Pompe Patient Program will be held from 9.30 p.m. – 3.30 p.m.

Featured presentations are about:

  • Current Status of Enzyme Replacement Therapy & Future Directions
  • The Role of Physical Therapy, Exercise & Diet
  • Pompe Disease Registry
  • Respiratory Complications & Respiratory Muscle Strength Training (RMST)
  • Antibodies in Pompe Disease & the Importance of Monitoring
  • MRI Surveillance in Pompe Disease
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