27 – 28 February 2014, Pompe Workshop at 3rd National Conference on Rare Diseases in Zagreb, Croatia
At Rare Disease Day the Croatian Alliance for Rare Diseases organises the 3rd National Conference on Rare Diseases in conjunction with the 3rd Croatian Symposium on Rare Diseases organised by the Croatian Society for Rare Diseases of the Croatian Medical Association.
Prof. Dr. Sc. Ervina Bilic, Reference Centre for Neuromuscular Diseases, Clinical Hospital Centre, Zagreb.
- Where to find a Pompe patient?
Mr. Sc. Ivan Pecin, Reference Centre for Metabolic Diseases, Clinical Hospital Centre, Zagreb.
- Why is it important to recognize a Pompe patient – success of therapy
Marko Studen, Pompe patient from Slovenia (t.b.c.).
- My story.
The Pompe Workshop will be held at:
Location: Hotel Dubrovnik in Zagreb, Croatia
Date: February 28th 2014
Time: From 2pm – 4pm.