International Pompe Day 2014

Category: Archive
April 9, 2014

For Immediate Release: April 9, 2014

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The IPA is excited to announce that the international Pompe community has chosen April 15, 2014 as the first annual International Pompe Day. The goal is to foster international awareness of Pompe Disease under the slogan “Together We Are Strong.” As a united community of patients, family, friends, physicians, scientists, and industry we have an undeniable strength. It is as a united community (the Pompe Model) that we have made great strides in learning more about Pompe Disease and in working towards treatments and disease management. It is as a united community that we support each other when the daily struggles of living with Pompe become too much. Nothing that has been accomplished would have been possible without everyone working together. Together We Are Strong!

The International Pompe Association (IPA) is organizing a variety of awareness activities including an online Photo Gallery! Many other events are being planned around the world to mobilize the community and increase awareness. For more information please visit the IPA website www.worldpompe.org to see how YOU can participate!

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