Expression of Hope III

Category: Archive
September 9, 2014

Genzyme’s program Expression of Hope III is open for submissions

Over the years Genzyme has organised the Expression of Hope program, an unique program to encourage everyone affected by a lysosomal storage disorder to create and submit a work of art that expresses their experiences of living with an LSD. This program helps to raise awareness as artwork is exhibited all around the world.

For more information about this wonderful project, please go to the Expression of Hope website.

Kezia (15 years old) organized a marathon/fundraiser in honor of International Pompe Day and her sister’s 10-year anniversary of being on treatment. Kezia also shared her family’s story with a local newspaper to raise awareness of Pompe disease.
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