Juna de Vries receives PhD on Natural course, effects of enzyme therapy and prognostic factors in adults with Pompe disease

On June 10, 2014 Dr. Juna de Vries received her PhD on ‘Natural course, effects of enzyme  therapy and prognostic factors...
Author: Maryze
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June 10, 2014

Attention for Pompe Disease in Russian newspaper

Attention for Pompe Disease in Russian Newspaper on International Pompe Day On International Pompe Day the Russian Pompe...
Author: Maryze and Alexander Kosenko
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May 17, 2014

Hero Award for Malaysian LSD Association President Ir. YeeSeng Lee

Hero Award for YeeSeng Lee, father of two Pompe girls and President of Malaysian LSD Association Ir. YeeSeng...
Author: Maryze and YeeSeng Lee
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May 4, 2014

Patients Sought for Biomarin Clinical Trial

BioMarin is currently seeking patients for a Phase 3 clinical trial in Late Onset Pompe Disease. This phase...
Author: Biomarin
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April 29, 2014

Raising Awareness with social media on International Pompe Day in Australia

To raise awareness on Pompe Disease and to get attention from politicians and the Minister of Health in...
Author: Maryze
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April 17, 2014

Celebration of International Pompe Day in Poland

April 15, 2014 Warswaw, Poland                                                                 The Pompe Association Poland invites you for the celebration of International Pompe Day at...
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April 15, 2014

Celebration of International Pompe Day in Italy

April 15, 2014 Firenze, Italy                                                                 Associazione Italiana Glicogenosi (AIG) organises the first International Pompe Day at April 15. The program...
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April 15, 2014

First tree planted in Pompe Garden in Warsaw

Polish patient organisations plant the first tree in Pompe Garden! During International Pompe Day the Polish Association of Pompe Patients in partnership...
Author: Maryze and Polish patient organisation
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April 14, 2014

2014 Annual Meeting of the German Group

April 11 – 13, 2014 in Duderstadt, Germany Annual Meeting of Selbsthilfegruppe Glykogenose Deutschland e.V.(German GSD Patient Association)...
Author: Webmaster
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April 11, 2014

Poland and Italy celebrate International Pompe Day

Poland and Italy celebrate International Pompe Day Italy Associazione Italiana Glicogenosi (AIG) has given quite some attention to...
Author: Maryze
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April 11, 2014
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