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Poll: Logo for the International Pompe Day
We have our official International Pompe Day Slogan: Together We Are Strong! The next step is to choose...
Author:
IPA
Archive
November 9, 2013
Poll: Logo
Please submit your vote for the Logo of the Official International Pompe Day. Hi All, It’s that time...
Author:
Webmaster
Archive
November 9, 2013
Poll: Logo for the International Pompe Day
We have our official International Pompe Day Slogan: Together We Are Strong! The next step is to choose...
Author:
IPA
Archive
November 9, 2013
Drugs for Pompe disease disease will continue to be available for patients in The Netherlands
The drugs for Pompe disease will continue to be reimbursed through the Dutch basic healthcare insurance package after...
Author:
Ria Broekgaarden
Archive
October 6, 2013
Myozyme Reimbursement Continued in The Netherlands
On October 3, 2013, the Dutch Minister of Health, Ms. Edith Schippers, announced that Myozyme will continue to...
Author:
IPA
Archive
October 3, 2013
6. Pompe Patiententreffen 2013 Selbsthilfeorganisation Morbus Pompe Österreich
September 27 – 28, 2013 in Linz, Austria 6th Annual Patient Meeting of Pompe Patients in Austria. The...
Author:
Archive
September 27, 2013
2013 AGSD-USA Family and Medical Conference
September 20 – 21, 2013, Cary, North Carolina, USA 2013 AGSD – USA Family and Medical Conference The Association...
Author:
Archive
September 20, 2013
VSN Neuromuscular Disease Conference and the Pompe Disease Program
September 7, 2013 in Veldhoven, The Netherlands Neuromuscular Diseases Conference – Information and Meeting Eachother The...
Author:
Maryze
Archive
September 7, 2013
VSN Neuromuscular Disease Conference and the Pompe Disease Program
September 7, 2013 in Veldhoven, The Netherlands Neuromuscular Diseases Conference – Information and Meeting Eachother The...
Author:
Maryze
Archive
September 7, 2013
Poll: Slogan for the International Pompe Day
The First Annual International Pompe Day will be held on April 15, 2014. To make International Pompe Day...
Author:
IPA
Archive
July 17, 2013
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