We have our official International Pompe Day Slogan: Together We Are Strong! The next step is to choose...
Author: IPA
Archive
November 9, 2013
Please submit your vote for the Logo of the Official International Pompe Day. Hi All, It’s that time...
Author: Webmaster
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November 9, 2013
We have our official International Pompe Day Slogan: Together We Are Strong! The next step is to choose...
Author: IPA
Archive
November 9, 2013
The drugs for Pompe disease will continue to be reimbursed through the Dutch basic healthcare insurance package after...
Author: Ria Broekgaarden
Archive
October 6, 2013
On October 3, 2013, the Dutch Minister of Health, Ms. Edith Schippers, announced that Myozyme will continue to...
Author: IPA
Archive
October 3, 2013
September 27 – 28, 2013 in Linz, Austria  6th Annual Patient Meeting of Pompe Patients in Austria. The...
Author:
Archive
September 27, 2013
September 20 – 21, 2013, Cary, North Carolina, USA                             2013 AGSD – USA Family and Medical Conference The Association...
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Archive
September 20, 2013
                           September 7, 2013 in Veldhoven, The Netherlands Neuromuscular Diseases Conference – Information and Meeting Eachother The...
Author: Maryze
Archive
September 7, 2013
                           September 7, 2013 in Veldhoven, The Netherlands Neuromuscular Diseases Conference – Information and Meeting Eachother The...
Author: Maryze
Archive
September 7, 2013
The First Annual International Pompe Day will be held on April 15, 2014. To make International Pompe Day...
Author: IPA
Archive
July 17, 2013
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