Poll: Slogan for the International Pompe Day

The First Annual International Pompe Day will be held on April 15, 2014. To make International Pompe Day...
Author: IPA
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July 17, 2013

Poll: Slogan

Please submit your vote for the Slogan of the Official International Pompe Day. You are asked to take...
Author: Webmaster
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July 16, 2013

Genzyme announces NEO1 Clinical Study

Genzyme, a Sanofi company, announced today a phase 1 study, called NEO1, to investigate a second generation product...
Author: Genzyme
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July 16, 2013

Lecture by Dr. Alfred Slonim in Barcelona, Spain

Tuesday, July 9th, 2013 at Sant Joan de Déu Children Hospital, Barcelona, Spain Dr. Alfred Slonim will give a lecture...
Author: Maryze
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July 9, 2013

Second Pompe Awareness Day in India

At June 1st 2013, the second Pompe Awareness Day in India was observed in Bangelore. The day has...
Author: LSD Support Society India
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June 5, 2013

India Pompe Awareness Day LSDSS

                                                                                                              India Pompe Awareness Day, June 1st 2013 The LSDSS (Lysosomal Storage Disorder Support Society)...
Author: Maryze
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June 1, 2013

Federal Advisory Committee Recommends Pompe Disease for Universal Newborn Screening

On May 17, 2013 – in a long awaited meeting in Washington DC (USA), the Secretary’s Discretionary Advisory...
Author: geneticalliance.org
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May 18, 2013

Discoverer of lysosomes, Dr. Christian de Duve, dies at 95

Dr. Christian de Duve, a Belgian biochemist who discovered the lysosomes, died at May 4 2013. Dr. de...
Author: Maryze
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May 12, 2013

Rare Disease Patient Meeting in Croatia

At Saturday, April 13, 2013, individual rare disease patients, the Croatian Society of Patients with Rare Diseases and...
Author: Maryze
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April 23, 2013

2nd Annual Duke University – United Pompe Foundation Pompe Social & Patient Meeting

April 18 – 20, 2013, Lenox Baker Hospital, Durham, North Carolina, USA The 2nd Annual Duke University –...
Author: Maryze
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April 18, 2013
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