April 12 – 14, 2013 in Duderstadt, Germany Annual Meeting of Selbsthilfegruppe Glykogenose Deutschland e.V.(German GSD Patient Association)...

April 12 – 13, 2013 in Zagreb, Croatia 1st South-East European Congress on Pompe Disease www.pompe2013.org

April 12 – 13, 2013 in Zagreb, Croatia 1st South-East European Congress on Pompe Disease www.pompe2013.org

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A prospective study of the Erasmus MC University Medical Center (Rotterdam, the Netherlands) shows that Enzyme Replacement Therapy...

Please take a moment and visit the International Pompe Day Page on the IPA website and vote for the...

We are excited to announce that the dates below have been proposed for the Official International Pompe Day....

BioMarin Pharmaceutical Inc. announced results from POM-001, the Phase 1/2 trial for BMN-701, a fusion protein of insulin-like...

On March 10th 2013, Chinese Pompe patients came together to establish the Pompe Rare Disease Care Center and...

  March 10, 2013, Beijing, P.R. China Pompe Patients Establishment Meeting & First Meeting of Patient Group At...