The Swiss Pompe Group

When I joined the AMDA Pompe congress in San Antonio in October this year, it was a really...
Author: Caspar Kemper
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December 21, 2015

Interacting with the Pompe Community

Please use the many ways to communicate and interact with other patients, national patient associations and others, e.g:...
Author: Webmaster
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November 17, 2015

Pompe Registry – A Decade of Making a Difference

Youtube video by Genzyme Corp., published April 08, 2015 https://www.youtube.com/watch?v=hnjzV7dkbhs In 2014, the Pompe Registry recognized and celebrated...
Author: Webmaster
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November 12, 2015

2015 AMDA International Pompe Patient and Scientific Conference

October 30 – November 1, 2015, San Antonio, Texas, USA                             At the AMDA International Patient and Scientific Conference participants from all over...
Author:
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October 30, 2015

#AMDAIPA Pompe Conference on Twitter

Anybody aware of the upcoming Pompe conference 30 October – 1 November in San Antonio TX, USA? More...
Author: Webmaster
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October 11, 2015

Australia has admitted life-saving drug for Pompe disease in the Australian Life-Saving Drug Programme

After years of hard work, persistence, and commitment, the Australian Pompe Association (APA) has achieved its goal–adult Pompe...
Author: IPA
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July 31, 2015

Testing… please ignore!

Webmaster at work…
Author: Webmaster
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July 22, 2015

Visit to the World War II Commemoration Monument in Saint Pancras (The Netherlands)

IPA Remembers Dr. Johannes Pompe On June 11, 2015 a delegation of the International Pompe Association (IPA) visited...
Author: Maryze and Tiffany
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July 21, 2015

Registration is now open for the 2015 International Pompe Patient and Scientific Conference

We are excited to announce that Registration is now open for the 2015 International Pompe Patient and Scientific...
Author: IPA
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May 31, 2015

Celebrating International Pompe Day in the Research Laboratory at the Erasmus MC in Rotterdam, The Netherlands

The 2nd International Pompe Day was organised in the Netherlands by the Dutch Neuromuscular Disease Association in conjunction...
Author:
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May 25, 2015
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